A two-year-old girl, born with an unusual condition causing excessive hair growth across her face and body, has earned the endearing nickname of a “child from heaven” from Malaysia’s royal family.
Adik’s parents, Roland Jimbai, 47, and Theresa Guntin, 28, eagerly awaited a special meeting with Sultan Yang di-Pertuan Agong Al-Sultan Abdullah Ri’ayatuddin Al-Mustafa Billah and his consort, Raja Permaisuri Agong Tunku Azizah Aminah Maimunah Iskandariah in Bintulu, Borneo on September 11.
Adik’s condition, known as ‘werewolf syndrome,’ has caused her to have excessive hair growth since birth and a unique challenge of being born without nostrils, told the NY Post.
The term ‘werewolf syndrome’ is a colloquial reference to Adik’s condition, scientifically called congenital generalized hypertrichosis (CGH). Remarkably rare, there have been fewer than 100 documented cases of CGH since the Middle Ages.
The royal couple expressed their admiration for Adik, referring to her as an “anak syurga,” which translates to “a child from heaven.”
Adik’s father shared his joy, stating, “It was worth the wait when Sultan Abdullah, Tunku Azizah, and their children met up with our family and took pictures with Missclyen,” referring to Adik. “I am incredibly happy that we had the chance to meet the King and Queen. I am still at a loss for words.
The King told me to take care of Missclyen as she is God’s blessing,” Jimbai added. He also expressed his hope for a future meeting with the royal couple.
Sadly, the family has faced hurtful remarks and prejudice, with some referring to Adik as an “animal child.” Jimbai and Guntin initially felt distressed and avoided public places, except for necessary hospital visits, due to the fear of negative comments.
Fortunately, Adik’s unique condition has not impacted her overall health, although there is currently no cure for hypertrichosis.
People with ‘werewolf syndrome’ manage excessive hair growth through various methods like bleaching, trimming, shaving, waxing, lasers, and other hair removal techniques.