Bruce Willis’s wife was deeply moved by the powerful and emotionally charged article featured in today’s New York Times Magazine.
The article takes readers on a poignant journey alongside a family grappling with the harrowing reality of a 50-50 chance of carrying the genetic mutation responsible for frontotemporal dementia (FTD).
The raw and impactful account left such a profound impact that she found it challenging to read in one sitting, and even days later, the weight of the narrative’s pain and sorrow still lingers.
In her heartfelt expression, she stresses the importance of approaching this profoundly serious and heavy subject matter with caution, considering the devastating effects of FTD it explores.
She praises Robert Kolker for his remarkable sensitivity and compassion in writing the article and applauds the family’s courage and selflessness in sharing their personal journey, which has made a significant contribution to the community.
The importance of sharing such stories to raise awareness about the devastating impact of FTD cannot be overstated.
By shedding light on their struggles, she hopes that their experiences will resonate with countless families, including hers, the readers’, and the family’s, whether they face the genetic or sporadic form of the disease.
With heartfelt sincerity, she expresses her wish that the next time FTD is featured in the NYT Magazine, it will be accompanied by a story of progress—an account that brings hope of a cure, an effective drug, or a faster and more accurate diagnostic method to combat this dreadful disease before it becomes unmanageable.
In solidarity with families facing the challenges of FTD, Bruce Willis’s wife encourages everyone to utilize the abundant resources provided by @theaftd (links in bio).
She calls for collective action to raise awareness, foster understanding, and work tirelessly toward a future where FTD no longer casts a dark shadow over the lives of countless individuals and their loved ones.
With empathy, compassion, and support, she envisions a world where the burden of FTD is alleviated, and families find solace in the face of this relentless disease.
The cover story of today’s NYT Magazine explores a family’s journey contending with the fact that they have a 50-50 chance of carrying the genetic mutation of frontotemporal dementia (FTD.)
This article was so emotionally impactful that it took me days to get through reading it, I just couldn’t do it in one sitting given how deeply serious and heavy it was. In fact, I still haven’t fully been able to shake off the pain I felt listening to the devastating details of this family’s journey. Proceed with caution.
Robert Kolker, who covered their story, did it in a very sensitive and compassionate way. The family was so courageous to share their personal story and so selflessly—it has served our community well.
These are, unfortunately, the stories it takes to raise awareness around this devastating disease. I know they will be heard and ultimately make a difference for your family, mine, and I pray, for theirs whether it be genetic or sporadic cases.
My hope is the next time FTD makes the cover of the NYT Magazine, it’ll be a story about a cure, an efficacious drug, and/or a faster way to diagnose this horrendous disease before it evolves into something unmanageable.
If you are a family in need of support today, please take advantage of all @theaftd resources have available to you.
(links in bio)
@bobkolker @nytmag #ftdawareness #frontotemporaldementia #endftd
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